Search

Kilburn mother forced to raise £30k for four-year-old girl’s operation after NHS pulls funding

14:07 18 February 2016

Bailey

Bailey's mum Shermel will attend the fundraising night at the Good Ship in Kilburn High Road on March 13 (Photo: Adam Thomas)

© Adam Tiernan Thomas

The family of a four-year-old girl from Kilburn Park with cerebral palsy have been forced to raise £30,000 for a life-changing operation after NHS funding for the treatment was suddenly stopped.

Bailey's cerebral palsy means she is unable to walk or play without a wheelchair or a walking frame (Pic: Adam Thomas)Bailey's cerebral palsy means she is unable to walk or play without a wheelchair or a walking frame (Pic: Adam Thomas)

Bailey Walters-Lawrence of Gorefield Place, was due to undergo selective dorsal rhizotomy (SDR) on her spine at Great Ormond Street Hospital to improve painful muscle stiffness.

She currently suffers from crippling spasms and struggles to walk unaided so was eligible for the procedure.

However, after two years of physiotherapy to prepare her muscles for the surgery, Bailey’s family was told in November that funding for the clinical trial of the surgery could no longer be found and unless they raised £30,000 to pay for it themselves by April, she faced a two-year wait before she could re-apply for NHS funding.

Shermel Walters-Lawrence, a mother of three and full-time carer to her daughter Bailey, said: “It was really heart-breaking and such a shock when they told us she couldn’t have her treatment.

Bailey, 4, Kacey, 1, and their older brother Shea, 7,are appealing for the community's help to fund her operation at Great Ormond Street Hospital (Photo: Adam Thomas)Bailey, 4, Kacey, 1, and their older brother Shea, 7,are appealing for the community's help to fund her operation at Great Ormond Street Hospital (Photo: Adam Thomas)

“She was very distressed because she’s in constant pain and the drugs she’s currently on have given her a stutter and she slurs her speech. I honestly feel helpless that I am not able to give my child comfort.

“Another two years would be excruciating for Bailey to wait but they’ve said she’s still booked in for surgery in April if we can raise the money privately.”

Previous attempts to use Botox treatment to loosen muscles in Bailey’s ankles, legs and hips have failed, resulting in tendons snapping bones in her foot and forcing her to use a walking frame and wheelchair to play with classmates at Christ Church primary school in Regent’s Park where she receives one-to-one learning and mobility support.

Ms Walters-Lawrence, 26, has now teamed up with the Just4Children charity to appeal for help in raising the £30,000 cost of the operation by April this year.

She said: “My eldest son’s first reaction was to tell me he was breaking open his piggy bank for Bailey’s operation.

“We would be grateful for any donation, no matter how small. You would be donating towards a little girl being able to walk, play football and dance with less pain and without her walking frame.”

A spokesman for NHS England, which funds the £2.5 million clinical trial into SDR said: “Current evidence is limited, but together with National Institute for Health and Care Excellence we are exploring SDR further through our innovative evaluation programme which offers treatment to a limited number of patients who meet the clinical criteria. Not only does this enable these children to have potentially life-changing surgery, but it also provides a real opportunity to gather the vital evidence we need on the procedure.”

To donate towards Bailey’s campaign by April 1 visit justgiving.com/baileyswish.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other Kilburn Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Kilburn Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Kilburn Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Latest Kilburn & Brent News Stories

Tess receiving strokes at the Alzheimer Society cafe in Kingbury as part of the Mayhew Animal Home Therapaws programme

Three dogs from The Mayhew Animal Home were a howling hit in Kingsbury as they offered therapy at a dementia event.

Yesterday, 17:32
Chileshe Hall with daughter Na'ariyah Hall who was selling her dairy, sugar and gluten free chocolate spread at the South Kilburn Family Festival

More than 2,000 people joined in the fun at South Kilburn’s family festival.

Yesterday, 17:22
Mario White (Pic: City of London Police)

A man from Willesden has been jailed for his role in a “professional and sophisticated” £100,000 motorbike theft racket.

Yesterday, 17:01
Thirty-eight pupils were excluded for sexual misconduct. Picture: PA

Thirty-eight pupils in Brent were excluded from secondary school last year for sexual misconduct, figures have revealed.

Yesterday, 12:30
Hussam Elhandi has been jailed for 10 years

A female police officer has spoken about the terrifying moment when a violent armed robber from Willesden attempted to stab her as she tried to arrest him.

Yesterday, 10:46
Police are investigating the stabbing

A police investigation is underway after a young man was stabbed in Harlesden in the early hours of Saturday morning.

Sunday, July 24, 2016
Resident in Brent could lose up to £200 a month in benefits

Brent residents in receipt of welfare benefits may see their money slashed by up to £200 a month as changes come in from the government.

Saturday, July 23, 2016
Mayor of Brent Cllr Parvez Ahmed held his first fundraising event attended by more than 300 people

The Mayor of Brent has raised more than £2,350 for his three chosen charities at his first fundraising event.

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now

Newsletter Sign Up

Most Read Kilburn News

HOT JOBS

Show Job Lists

Competitions

Which book character do you share cleaning habits with?

Whether you have more in common with put-upon Cinderella, emotionally turbulent Jane Eyre, or easily distracted Mole, you’re sure to appreciate that one lucky winner will receive four sessions of free cleaning. Enter our quiz for your chance to win. All runners up will get £10 off their first clean when making a repeat booking.

£15k prize bundle

Imagine having the opportunity to win an incredible £15,000 bundle of some of the most amazing prizes available. Well, for one lucky contest entrant that dream could soon become a reality because we at MyOffers are offering an incredible free prize bundle that will make even the most hardened person wild with excitement.

Digital Edition

cover

Enjoy the
Brent & Kilburn Times
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now